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年初，病痛挑战基金会以“生而不凡”为主题，启动罕见病群像传播计划，联合多方伙伴，通过视频、图文、漫画、评论观察、线下活动等形式，传递罕见病的病友故事、科普知识和有关罕见病领域的思考，让公众了解罕见病群体，减少误解与偏见，尊重每一个罕见病病友，倡导各界治疗白癜风多少钱中科公益基金
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